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Advocacy Relations Director

Job Summary

A company is looking for an Advocacy Relations Director for Thyroid Eye Disease (TED).

Key Responsibilities:
  • Lead the development and execution of a TED advocacy strategy focused on raising disease awareness and supporting diagnosis
  • Cultivate partnerships with TED advocacy organizations, patients, and caregivers to ensure community needs are prioritized
  • Collaborate with cross-functional teams to amplify patient voices and develop programs that enhance understanding of TED
Required Qualifications:
  • Doctorate degree and 4 years of patient advocacy and/or healthcare policy experience, or
  • Master's degree and 7 years of patient advocacy and/or healthcare policy experience, or
  • Bachelor's degree and 9 years of patient advocacy and/or healthcare policy experience
  • 7+ years of experience with patient advocacy groups, particularly in rare disease communities
  • Strong understanding of the engagement dynamics within rare disease patient communities

Average salary estimate

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EMPLOYMENT TYPE
Full-time, remote
DATE POSTED
May 10, 2025

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